This is a website about having a chronic illness (cystic fibrosis), and being a person.
StyleComfy is what want to be: On top of my game, in control of my destiny, with socks that match and my to-do list checked by 3pm. In reality, I mostly feel like I’m playing ping pong with three rackets while singing the alphabet backwards. Join me in the journey of Keeping it Together.
Stuff I like: being efficient, medical gadgets, napping, breathing, organising, having a career, colours, art and design.
Sign up for free blog updates delivered straight to your inbox. Please remember to click the confirmation link you will receive. You can opt out at any time.
I always recommend that CF patients follow the standard, approved CF treatments as prescribed by their medical team. However even with the prescribed treatments, I regularly experience ailments that fall outside of the normal acutely sick symptoms. Often it is a general lethargy or body soreness, with/without more coughing - but with normal blood results, no new bugs to treat, and no unusual explanation. For these things, I have benefited from the below remedies and gadgets that I use alongside all my regular therapies (never instead of): 1. [...]
Guests love home-made bread! Today I am sharing my favourite time-saving party trick - a ridiculously easy and delicious baked bread for special occasions. You only need 3 pantry ingredients and 5 mins for prep! It is the superman of party bread. It is a hit with all ages and fussy eaters. It doesn't require eggs, so works for vegetarians. It is yeast-free but doesn't use weird* ingredients. We are always fighting over who gets the leftovers (when there are leftovers), [...]
I have cystic fibrosis and we have 5 pets that shed. We love our pets! The dogs are kept off the furniture as they are large dogs and they have their own beds with washable covers in different places in the house. But the cats do a fine job of getting their hair EVERYWHERE. While I am not acutely allergic, I used to be when we first got the cats, so I feel it can only help to be [...]
A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted of several hundred participants and we danced non-stop for hours in front of a selection panel. An elite group of dancers would be chosen to go on a week-long vacation festival away from home! It would be a fun filled week of dancing and socials, my first big trip away from home - this appealed to both the [...]