DIY nebulizer sterilizer hack for Cystic Fibrosis treatments

**Note: this is not medical advice and this method has not been approved by any medical professionals or suppliers. It is just a workaround method used by someone with CF. It should only be tried on nebulizer parts that can be [...]

By | 2018-02-03T21:00:16+00:00 February 3rd, 2018|All posts, Cystic Fibrosis|0 Comments

Fashion tips and favorite products for my Cystic Fibrosis body

With CF, unexpected body changes can make getting dressed in the morning a frustrating experience. Exhibit A: What size will I be in the morning? Although your friends may remark that they too would 'love to eat anything and not [...]

By | 2018-02-03T21:14:23+00:00 January 31st, 2018|All posts, Cystic Fibrosis, Organising|0 Comments

Top remedies or tools for CF related ailments

I always recommend that CF patients follow the standard, approved CF treatments as prescribed by their medical team. However even with the prescribed treatments, I regularly experience ailments that fall outside of the normal acutely sick symptoms. Often it is a general lethargy or body soreness, with/without [...]

By | 2017-09-03T09:57:00+00:00 January 19th, 2017|All posts, Cystic Fibrosis|0 Comments

Simple pet-friendly washable couch covers

I have cystic fibrosis and we have 5 pets that shed.  We love our pets! The dogs are kept off the furniture as they are large dogs and they have their own beds with washable covers in different places in [...]

By | 2017-09-03T09:57:06+00:00 December 25th, 2016|All posts, Cystic Fibrosis, Organising, Subpar Crafting|0 Comments

A post about goals, managing expectations and disappointment

A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted of several hundred participants and we danced non-stop for hours in front of a selection panel. An elite group of [...]

By | 2016-12-25T19:19:17+00:00 December 12th, 2016|All posts, Cystic Fibrosis|0 Comments

Think INSIDE the box to make inhaled treatments easier

  It’s taken me a long time, but I finally have a 'system' that has made inhaled treatments easier to keep up with. (edit: it is now 2 years later and this systems still works great!) Background In childhood, I [...]

By | 2018-09-06T08:48:21+00:00 November 27th, 2016|All posts, Cystic Fibrosis, Organising|0 Comments