All the blog posts 2017-12-28T15:48:21+00:00

DIY nebulizer sterilizer hack for Cystic Fibrosis treatments

**Note: this is not medical advice and this method has not been approved by any medical professionals or suppliers. It is just a workaround method used by someone with CF. It should only be tried on nebulizer parts that can be boiled** My DIY nebulizer sterilizer hack I have a confession: I never used to sterilize my nebulizer "handsets" (you know, the parts which holds the medication and attached to the mouthpiece). Up until I was in my late 20s I didn't [...]

February 3rd, 2018|Categories: All posts, Cystic Fibrosis|

Fashion tips and favorite products for my Cystic Fibrosis body

With CF, unexpected body changes can make getting dressed in the morning a frustrating experience. Exhibit A: What size will I be in the morning? Although your friends may remark that they too would 'love to eat anything and not gain weight', or declare that if they had 'your figure I’d wear anything’ they forget that people with CF can also suffer from body related issues. For example, thin arms and legs, large ribcage but no boobs, bulging cyborg port [...]

January 31st, 2018|Categories: All posts, Cystic Fibrosis, Organising|

Top remedies or tools for CF related ailments

I always recommend that CF patients follow the standard, approved CF treatments as prescribed by their medical team. However even with the prescribed treatments, I regularly experience ailments that fall outside of the normal acutely sick symptoms. Often it is a general lethargy or body soreness, with/without more coughing - but with normal blood results, no new bugs to treat, and no unusual explanation. For these things, I have benefited from the below remedies and gadgets that I use alongside all my regular therapies (never instead of): 1. Carrot, beetroot [...]

January 19th, 2017|Categories: All posts, Cystic Fibrosis|Tags: |

Awesome, easy, sweet corn bread recipe (3 ingredients, 5 minutes prep!)

Guests love home-made bread! Today I am sharing my favourite time-saving party trick - a ridiculously easy and delicious baked bread for special occasions. You only need 3 pantry ingredients and 5 mins for prep! It is the superman of party bread. It is a hit with all ages and fussy eaters. It doesn't require eggs, so works for vegetarians. It is yeast-free but doesn't use weird* ingredients. We are always fighting over who gets the leftovers (when there are leftovers), and with [...]

December 30th, 2016|Categories: All posts, Recipes|Tags: |

Simple pet-friendly washable couch covers

I have cystic fibrosis and we have 5 pets that shed.  We love our pets! The dogs are kept off the furniture as they are large dogs and they have their own beds with washable covers in different places in the house. But the cats do a fine job of getting their hair EVERYWHERE. While I am not acutely allergic, I used to be when we first got the cats, so I feel it can only help to be in hair [...]

December 25th, 2016|Categories: All posts, Cystic Fibrosis, Organising, Subpar Crafting|Tags: |

A post about goals, managing expectations and disappointment

A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted of several hundred participants and we danced non-stop for hours in front of a selection panel. An elite group of dancers would be chosen to go on a week-long vacation festival away from home! It would be a fun filled week of dancing and socials, my first big trip away from home - this appealed to both the princess and [...]

December 12th, 2016|Categories: All posts, Cystic Fibrosis|

Think INSIDE the box to make inhaled treatments easier

  It’s taken me a long time, but I finally have a 'system' that has made inhaled treatments easier to keep up with. (edit: it is now 2 years later and this systems still works great!) Background In childhood, I was very compliant with the CF treatments, as my parents helped me. I didn’t need to think about it; it just happened. In my late teens and twenties, I started slacking in what I assume was a normal rebellious phase along [...]

November 27th, 2016|Categories: All posts, Cystic Fibrosis, Organising|

Introduction

I'm a 39 year old artist/graphic designer and I was born with the genetic condition, Cystic Fibrosis. This website is about life...the ups and downs, some art, and all the randomness in between.Life with a chronic illness comes with its challenges. In addition to the effects of the condition, there is a lot to deal with: daily treatments, pills, scripts, deliveries, payments and medical insurance, coordinating dr appointments, the daily cleaning and maintenance of the devices like nebulisers. Phew! At [...]

November 21st, 2016|Categories: All posts, Cystic Fibrosis, Organising, Things/Designs|

SIGN UP BELOW FOR FREE BLOG UPDATES SENT STRAIGHT TO YOUR INBOX

Please remember to click the confirmation link you will receive. You can opt out at any time.

Recent Posts

Categories

Leave A Comment